The International Association for the Study of Lung Cancer has become a member of the Lung Cancer Patient Registry.
IASLC joins the Bonnie J. Addario Lung Cancer Foundation and the American Lung Association’s LUNG FORCE, the registry’s current member organizations.
The registry’s objective is to provide a real-world view of patient outcomes and treatment effectiveness. Lung cancer patients enter information anonymously into the Registry. Registered patients, their families, health care providers, and researchers can access that information.
The registry enables registered researchers to query de-identified data in any combination of data elements using the research portal online search tool. Researchers interested in submitting proposals for placing clinical trials within the Registry may now submit a proposal.
“Anytime patients and doctors can collaborate more effectively, we improve the experience for both,” said Fred R. Hirsch, CEO of the IASLC. “As a global, multidisciplinary organization with a mission to conquer lung cancer, we look forward to the collaboration and the impact of the Lung Cancer Registry and are thrilled to join the partnership.”
This month, the Lung Cancer Registry will launch a study on the side effects of immunotherapy on non-small cell lung cancer patients using data provided by patient participants.
Patients with any form or stage of lung cancer can join the Registry at www.lungcancerregistry.org. Patients can opt-in to contribute their information, set their contact preferences and compare their lung cancer experience with others in The Registry. Patients can choose to receive information about research opportunities or other relevant news as part of their participation.
