publication date: Oct. 19, 2018

In Brief Count Me In pioneers new model in patient-partnered research

Researchers, cancer patients, and philanthropists have come together to launch Count Me In, a new nonprofit organization and model of patient-partnered research. Count Me In allows cancer patients anywhere in the United States or Canada to easily share their medical information, personal experience, and tumor samples for genetic analysis, propelling progress against cancer. Patient information is rapidly processed, de-identified and made available to all researchers worldwide.

Count Me In aims to sign up more than 100,000 patients across all major cancer types, as well as rare cancers, over the next several years. Cancer patients and researchers can visit JoinCountMeIn.org to learn more, join in one of the four current projects, or sign up to be updated when other projects launch.

Patient information holds important clues that might lead to new therapies or knowledge about who will respond to which treatments — but most of this information is never collected, aggregated, or made available for study.

One reason is that the vast majority of cancer patients receive treatment in community hospitals and clinics — not at the large academic medical centers that conduct cancer research. Because of this, only a fraction ever have the opportunity to contribute to research that might unlock critical insights.

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Copyright (c) 2018 The Cancer Letter Inc.