publication date: Aug. 3, 2018
Conversation with The Cancer Letter AACR’s Sweeney: Adoption of data standards necessary for advancing real-world evidence in precision oncology
Director, AACR Project GENIE Coordinating Center
Researchers at Project GENIE, the largest publicly available genomic database in the U.S., understand what it takes to convert sequencing data into real-world evidence: a lot of money, manpower, and data harmonization, said Shawn Sweeney, director of the American Association for Cancer Research Project GENIE Coordinating Center.
Project GENIE’s spend on data curation adds up to $3 million out of its $5 million annual budget. The AACR cancer registry, which receives clinical-grade genomic and clinical outcomes data from 19 institutions, is on track to amass 60,000 sequenced tumors by January 2019, a rapid increase from nearly 19,000 cases within two years.
“We’re actually in a transitional phase, where we’ve secured a significant amount of funding to go on and collect a deeper amount or a more complete picture of each patient’s experience with cancer, so more clinical data—beginning with a small test set of sites and six cancers, and then expanding over the next few years to more sites and more cancers,” Sweeney … Continue reading AACR’s Sweeney: Adoption of data standards necessary for advancing real-world evidence in precision oncology
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